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About the SCAGO Sickle Cell Summit 2023
The 3rd annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit is a virtual convening of the Sickle Cell Disease Community aimed to bring together all members of the Sickle Cell disease community to:
What to Expect: Over the course of two days, we aim to create an inclusive and engaging experience for participants, with multiple opportunities for knowledge translation and sharing of perspectives. There will be:
Expected Outcomes: At the conclusion of the Summit, members of our Sickle Cell Disease community in attendance will benefit from:
Youth with sickle cell disease (SCD) face challenges their peers without the disease may never know. These challenges range from missing days of school, to not able to participate in some physical activities to experiencing stigma due to delayed puberty, stroke, yellow eyes, bone and joint damage, and frequent hospitalizations, etc.
Furthermore, due to sickle cell disease complications, some may not be able to achieve as they would like to and underachievement may also trigger anxiety, fear, and other mental health-related issues.
Youth must also be educated on the importance of optimal disease management activities inclusive of taking prescribed medications, drinking fluids, avoiding extreme changes in temperature, eating a well-balanced diet, and engaging in behaviors that help prevent infections (e.g. hand washing, avoiding children who are sick).
It is also important to note that individuals with sickle cell disease are not cut out for strenuous, physical work- as such, emphasis must be placed on excelling academically.
For school-related resources on sickle cell disease, visit: https://sicklecellanemia.ca/schools
This page is dedicated to youth in their journey with sickle cell disease.
Where family members/caregivers are not sure if psychological help is necessary, a professional assessment should be sought, to make sure the youth is not in danger of mental illness and to ensure improved quality of life, it is important that family members/caregivers nurture their youth by providing assurance, guidance, and evidence-informed support.
The Sickle Cell Awareness Group of Ontario is proud to offer Piano, Math, and French lessons to youths living with Sickle Cell Disease.
SCAGO is partnering with one of our volunteers to provide virtual tutoring via SCAGO’s Zoom platform for up to 6 children (between the ages of 4-10) per week and in-person piano tutoring for 2-4 children weekly.
Terms
To register, click Here
Pregnancy and SCD | 07/22/2023
In this webinar, two peers with lived experience with pregnancy and Sickle Cell Disease talk about their experiences navigating pregnancies and living with Sickle Cell Disease.
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Hydroxyurea Use in Sickle Cell Disease | 04/15/2023
In this Webinar, Dr. Robert Klaassen, a pediatric hematologist, Ms. Tanya Else, a parent of a child taking hydroxyurea, and Ms. Brittany Lacheee, an adult taking hydroxyurea, discuss the medical benefits of hydroxyurea use for people with Sickle Cell Disease.
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Pain Assessment and Management in Adults and Children | 03/11/23
In this Webinar, Dr. Marko Erak, an emergency doctor at Humber River Hospital shares crucial tips on how to assess and manage pain in children and adults living with Sickle Cell Disease.
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Past Webinars: Videos & Presentations on Sickle Cell Disease | 01/14/23
In this Webinar, Dr. Upton Allen, Professor of Paediatrics at the University of Toronto, and Thea Campbell, SCAGO Social Worker, discuss the post-COVID-19 Landscape and how it impacts those living with Sickle Cell Disease
Watch Here