About the SCAGO Sickle Cell Summit 2023
The 3rd annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit is a virtual convening of the Sickle Cell Disease Community aimed to bring together all members of the Sickle Cell disease community to:
- Inspire those familiar and unfamiliar with the ever-changing landscape of Sickle Cell Disease (SCD) care to advocate for SCD
- Empower members of the Sickle Cell Disease community to better understand how to advocate for emerging therapies
- Further, advance inclusive and equitable SCD care
- Foster interprofessional collaborations at a provincial/national/international level
- Shape SCAGO’s focus areas and strategic direction
What to Expect: Over the course of two days, we aim to create an inclusive and engaging experience for participants, with multiple opportunities for knowledge translation and sharing of perspectives. There will be:
- Plenary sessions with panelists including Political Officials, public health officials, researchers, health care providers, industry representatives, and other experts
- Fostered connections with advocates at a provincial, national, and international level
- Reports from SCD center on the status of their continuous improvement in SCD care
- Safe spaces for health care providers, health system leaders, health policymakers, people living with Sickle Cell Disease, families, and caregivers the opportunity for discourse around current care practices
- Identified opportunities for cross-discipline collaborations
- Industry Partners Symposium with a panel of global leaders, clinicians, and industry partners from the inherited blood disorders community in a candid discussion
Expected Outcomes: At the conclusion of the Summit, members of our Sickle Cell Disease community in attendance will benefit from:
- Fostered connections with stakeholders navigating the everchanging landscape of SCD Care
- Improved visibility and profile of SCD care practices, therapies, and training opportunities available provincially, nationally, and internationally
- Empowered patients, caregivers, and family members of those living with Sickle Cell Disease to advocate for the removal of barriers to equitable care
- Opportunities to view an exhibition of research underway to respond to challenges with Sickle Cell Disease
- Improved cohesiveness between patient advocacy groups, healthcare professionals, political officials, those living with SCD, family members, and caregivers
- Improved understanding of the digital applications and tools available to promote continuous improvement of care delivery and self-management
