A dedicated community focused organization

Enriching Patient Lives & Advancing Awareness of Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

25+ years

of advocacy

2000+

members

A dedicated community focused organization

Enriching Patient Lives &
Advancing Awareness of
Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

20+ Years of Advocacy
for 2500+ Members

A dedicated community focused organization

Enriching Patient Lives &
Advancing Awareness of
Sickle Cell Anemia

Join SCAGO to access resources, education, training, and advocacy for those affected by sickle cell disease.

20+ Years of Advocacy
for 2500+ Members

Hope Gala & Awards

Join us for an inspiring evening of celebration, connection, and community as we recognize individuals and organizations making meaningful impacts in the sickle cell community. The Hope Gala & Awards brings together advocates, healthcare professionals, supporters, and families for a memorable night of elegance, storytelling, and recognition.
Event Details

Time: Cocktail Reception: 5:30 PM

Dinner & Awards Ceremony: 6:30 PM

Location: Renaissance by the Creek, 3045 Southcreek R Mississauga, ON L4X 2X7


What to Expect:

💫A warm cocktail reception to connect with community

members and partners

💫A delicious dinner experience

💫Inspiring award presentations honoring leaders
and changemakers

💫Stories of resilience, advocacy, and hope from
the sickle cell community

💫An evening of music, celebration, and meaningful impact

Hope Gala & Awards

Join us for an inspiring evening of celebration, connection, and community as we recognize individuals and organizations making meaningful impacts in the sickle cell community. The Hope Gala & Awards brings together advocates, healthcare professionals, supporters, and families for a memorable night of elegance, storytelling, and recognition.
Event Details

Time: Cocktail Reception: 5:30 PM

Dinner & Awards Ceremony: 6:30 PM

Location: Renaissance by the Creek, 3045 Southcreek R Mississauga, ON L4X 2X7


What to Expect:

💫A warm cocktail reception to connect with community

members and partners

💫A delicious dinner experience

💫Inspiring award presentations honoring leaders
and changemakers

💫Stories of resilience, advocacy, and hope from
the sickle cell community

💫An evening of music, celebration, and meaningful impact

Hope Gala & Awards

Join us for an inspiring evening of celebration, connection, and community as we recognize individuals and organizations making meaningful impacts in the sickle cell community. The Hope Gala & Awards brings together advocates, healthcare professionals, supporters, and families for a memorable night of elegance, storytelling, and recognition.
Event Details

Time: Cocktail Reception: 5:30 PM

Dinner & Awards Ceremony: 6:30 PM

Location: Renaissance by the Creek, 3045 Southcreek R Mississauga, ON L4X 2X7


What to Expect:

💫A warm cocktail reception to connect with community

members and partners

💫A delicious dinner experience

💫Inspiring award presentations honoring leaders
and changemakers

💫Stories of resilience, advocacy, and hope from
the sickle cell community

💫An evening of music, celebration, and meaningful impact

Stay Informed and Engaged

Stay Informed and Engaged

Upcoming Webinars, Events & News

Upcoming Webinars, Events & News

JOIN SCAGO'S BOARD OF DIRECTORS
Opportunity
March 4, 2026
Virtual

JOIN SCAGO'S BOARD OF DIRECTORS

The Sickle Cell Awareness Group of Ontario (SCAGO) is currently seeking dedicated individuals to join our Board of Directors. We welcome applicants who are passionate about supporting people living with sickle cell disease through: -Advocacy -Education -Care advancement -Community support We are especially interested in candidates with expertise in: -Primary Care Medicine -Adult Hematology -Nursing Education - Law

Event
March 25, 2026 • 12:30 AM – 5 PM
2 AUCTION LN, BRAMPTON, ON L6T 0C4

What to Expect: 💉On-site support to book blood donation appointments 🤝Community booths and social networking 🩸Hear patient perspectives on why blood donation matters 🍽Food, refreshments, and community connection 🎁Prizes and giveaways Join our partner for life team! Click the join now button. Enter Team Code: SICK327620 or Sickle Cell Awareness Group of Ontario on the CBS app

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care
Learning for Life
March 27, 2026 • 9 AM
Virtual

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care

DR. JACOB PENDERGRAST:UHN-Hematologist DR. OLANIYI AJISAFE-Primary Care Coordination for Sickle Cell Disease- BCCHC DR. MARKO ERAK:-Humber: ER Physician

Join the Youth Empowerment Program
Opportunity
March 31, 2026
Virtual

Join the Youth Empowerment Program

Who can apply? Youth with or affected by sickle cell disease Advocates for individuals with sickle cell disease Ages 15-30, Canadian citizenship, permanent residency or refugee status. What's in it for you? A micro-grant of up to $5,000 to spend towards a pre-approved Youth-led project from April 2026-September 2026 Develop leadership and project management skills in a hybrid program with peers across Canada Be a part of groundbreaking initiative to make a difference in your community

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW
Learning for Life
May 29, 2026 • 11 AM – 12:30 PM
Virtual

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW

GUEST SPEAKERS DR. LEON RIVLIN Emergency Physician and a Chronic Pain Expert Humber River Health FITZ-ANN HOWELL Chair of Patient Advisory & Advocacy (PAAC), SCAGO DR. JODIE ODAME Clinical Fellow in Haematology/Oncology Hospital for Sick Children

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS
Learning for Life
July 24, 2026 • 11 AM – 12:30 PM
Virtual

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS

Speakers: DR. RAJAT KUMAR Hematologist Princess Margaret Cancer Centre ANDREA KHANJIN Minister of Red Tape Reduction of Ontario, Patient VICTORIA GRAY World's First Sickle Cell Patient Treated With CRISPR Gene Editing

Official Charity Partner: 2026 TCS Charity Challenge
Event
October 16, 2026 • 9 AM

Official Charity Partner: 2026 TCS Charity Challenge

Join Team SCAGO for the Waterfront Marathon 5K Start line: University Ave, south of Pearl St, Toronto HOW TO GET INVOLVED: . 9:00 AM Start Time REGISTER FOR THE 5K AND SELECT SCAGO · Start line: University Ave, JOIN OR CREATE A TEAM -REGISTER FOR THE 5K AND SELECT SCAGO -JOIN OR CREATE A TEAM -FUNDRAISE AND INVITE OTHERS TO SUPPORT -DONATE DIRECTLY IF YOU CAN'T RUN Can't join the 5K? You can still make an impact. Use the link below and select "Donate Now" under the Sickle Cell Awareness Group of Ontario to support SCAGO and the sickle cell community. Register or donate to SCAGO here: https://tinyurl.com/SCAGOTCS2026 QUESTIONS? PLS. REACH OUT TO: gta@sicklecellanemia.ca

Opportunity
March 4, 2026
Virtual

The Sickle Cell Awareness Group of Ontario (SCAGO) is currently seeking dedicated individuals to join our Board of Directors. We welcome applicants who are passionate about supporting people living with sickle cell disease through: -Advocacy -Education -Care advancement -Community support We are especially interested in candidates with expertise in: -Primary Care Medicine -Adult Hematology -Nursing Education - Law

Event
March 25, 2026 • 12:30 AM – 5 PM
2 AUCTION LN, BRAMPTON, ON L6T 0C4

What to Expect: 💉On-site support to book blood donation appointments 🤝Community booths and social networking 🩸Hear patient perspectives on why blood donation matters 🍽Food, refreshments, and community connection 🎁Prizes and giveaways Join our partner for life team! Click the join now button. Enter Team Code: SICK327620 or Sickle Cell Awareness Group of Ontario on the CBS app

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care
Learning for Life
March 27, 2026 • 9 AM
Virtual

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care

DR. JACOB PENDERGRAST:UHN-Hematologist DR. OLANIYI AJISAFE-Primary Care Coordination for Sickle Cell Disease- BCCHC DR. MARKO ERAK:-Humber: ER Physician

Join the Youth Empowerment Program
Opportunity
March 31, 2026
Virtual

Join the Youth Empowerment Program

Who can apply? Youth with or affected by sickle cell disease Advocates for individuals with sickle cell disease Ages 15-30, Canadian citizenship, permanent residency or refugee status. What's in it for you? A micro-grant of up to $5,000 to spend towards a pre-approved Youth-led project from April 2026-September 2026 Develop leadership and project management skills in a hybrid program with peers across Canada Be a part of groundbreaking initiative to make a difference in your community

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW
Learning for Life
May 29, 2026 • 11 AM – 12:30 PM
Virtual

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW

GUEST SPEAKERS DR. LEON RIVLIN Emergency Physician and a Chronic Pain Expert Humber River Health FITZ-ANN HOWELL Chair of Patient Advisory & Advocacy (PAAC), SCAGO DR. JODIE ODAME Clinical Fellow in Haematology/Oncology Hospital for Sick Children

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS
Learning for Life
July 24, 2026 • 11 AM – 12:30 PM
Virtual

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS

Speakers: DR. RAJAT KUMAR Hematologist Princess Margaret Cancer Centre ANDREA KHANJIN Minister of Red Tape Reduction of Ontario, Patient VICTORIA GRAY World's First Sickle Cell Patient Treated With CRISPR Gene Editing

Official Charity Partner: 2026 TCS Charity Challenge
Event
October 16, 2026 • 9 AM

Official Charity Partner: 2026 TCS Charity Challenge

Join Team SCAGO for the Waterfront Marathon 5K Start line: University Ave, south of Pearl St, Toronto HOW TO GET INVOLVED: . 9:00 AM Start Time REGISTER FOR THE 5K AND SELECT SCAGO · Start line: University Ave, JOIN OR CREATE A TEAM -REGISTER FOR THE 5K AND SELECT SCAGO -JOIN OR CREATE A TEAM -FUNDRAISE AND INVITE OTHERS TO SUPPORT -DONATE DIRECTLY IF YOU CAN'T RUN Can't join the 5K? You can still make an impact. Use the link below and select "Donate Now" under the Sickle Cell Awareness Group of Ontario to support SCAGO and the sickle cell community. Register or donate to SCAGO here: https://tinyurl.com/SCAGOTCS2026 QUESTIONS? PLS. REACH OUT TO: gta@sicklecellanemia.ca

Opportunity
March 4, 2026
Virtual

The Sickle Cell Awareness Group of Ontario (SCAGO) is currently seeking dedicated individuals to join our Board of Directors. We welcome applicants who are passionate about supporting people living with sickle cell disease through: -Advocacy -Education -Care advancement -Community support We are especially interested in candidates with expertise in: -Primary Care Medicine -Adult Hematology -Nursing Education - Law

Event
March 25, 2026 • 12:30 AM – 5 PM
2 AUCTION LN, BRAMPTON, ON L6T 0C4

What to Expect: 💉On-site support to book blood donation appointments 🤝Community booths and social networking 🩸Hear patient perspectives on why blood donation matters 🍽Food, refreshments, and community connection 🎁Prizes and giveaways Join our partner for life team! Click the join now button. Enter Team Code: SICK327620 or Sickle Cell Awareness Group of Ontario on the CBS app

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care
Learning for Life
March 27, 2026 • 9 AM
Virtual

Integrated care and support in sickle cell disease: the role of primary, secondary, and tertiary care

DR. JACOB PENDERGRAST:UHN-Hematologist DR. OLANIYI AJISAFE-Primary Care Coordination for Sickle Cell Disease- BCCHC DR. MARKO ERAK:-Humber: ER Physician

Join the Youth Empowerment Program
Opportunity
March 31, 2026
Virtual

Join the Youth Empowerment Program

Who can apply? Youth with or affected by sickle cell disease Advocates for individuals with sickle cell disease Ages 15-30, Canadian citizenship, permanent residency or refugee status. What's in it for you? A micro-grant of up to $5,000 to spend towards a pre-approved Youth-led project from April 2026-September 2026 Develop leadership and project management skills in a hybrid program with peers across Canada Be a part of groundbreaking initiative to make a difference in your community

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW
Learning for Life
May 29, 2026 • 11 AM – 12:30 PM
Virtual

NOVEL THERAPIES IN SICKLE CELL DISEASE PAIN MANAGEMENT: WHAT PATIENTS AND FAMILIES SHOULD KNOW

GUEST SPEAKERS DR. LEON RIVLIN Emergency Physician and a Chronic Pain Expert Humber River Health FITZ-ANN HOWELL Chair of Patient Advisory & Advocacy (PAAC), SCAGO DR. JODIE ODAME Clinical Fellow in Haematology/Oncology Hospital for Sick Children

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS
Learning for Life
July 24, 2026 • 11 AM – 12:30 PM
Virtual

UNDERSTANDING GENE THERAPY IN SICKLE CELL DISEASE: BENEFITS, RISKS, AND TREATMENT CONSIDERATIONS

Speakers: DR. RAJAT KUMAR Hematologist Princess Margaret Cancer Centre ANDREA KHANJIN Minister of Red Tape Reduction of Ontario, Patient VICTORIA GRAY World's First Sickle Cell Patient Treated With CRISPR Gene Editing

Official Charity Partner: 2026 TCS Charity Challenge
Event
October 16, 2026 • 9 AM

Official Charity Partner: 2026 TCS Charity Challenge

Join Team SCAGO for the Waterfront Marathon 5K Start line: University Ave, south of Pearl St, Toronto HOW TO GET INVOLVED: . 9:00 AM Start Time REGISTER FOR THE 5K AND SELECT SCAGO · Start line: University Ave, JOIN OR CREATE A TEAM -REGISTER FOR THE 5K AND SELECT SCAGO -JOIN OR CREATE A TEAM -FUNDRAISE AND INVITE OTHERS TO SUPPORT -DONATE DIRECTLY IF YOU CAN'T RUN Can't join the 5K? You can still make an impact. Use the link below and select "Donate Now" under the Sickle Cell Awareness Group of Ontario to support SCAGO and the sickle cell community. Register or donate to SCAGO here: https://tinyurl.com/SCAGOTCS2026 QUESTIONS? PLS. REACH OUT TO: gta@sicklecellanemia.ca

Find the help you need

Explore our Resources

Discover our valuable resources designed to support the sickle cell community. From educational programs and immunization information to counselling services and grant support, we provide essential tools and opportunities to enhance your knowledge and well-being.

Find the help you need

Explore our Resources

Discover our valuable resources designed to support the sickle cell community. From educational programs and immunization information to counselling services and grant support, we provide essential tools and opportunities to enhance your knowledge and well-being.

See More

See More

See More

See More

See More

See More

Our Story

Our Story

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi. 

SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi.  SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

Our Story

The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi. SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.

WELCOME TO SCAGO

Support and Resources For You and Your Family

Support and Resources For
You and Your Family

Care & Treatment

Advocacy & Awareness

Education & Support

Research & Studies

Committed To Your Wellbeing

Committed To Your Wellbeing

Since its establishment, SCAGO has invested 100% of its resources in improving the quality of life of individuals and families affected by sickle cell disease. It engages in evidentiary advocacy on their behalf with the government, schools, and the healthcare system. We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Ontarians living with sickle cell disease—and ultimately to find a universal cure for this devastating disease.


WELCOME TO SCAGO

Support & Resources
For You and Your Family

Care & Treatment

Advocacy & Awareness

Education & Support

Research & Studies


Committed To Your Wellbeing

Since its establishment, SCAGO has invested 100% of its resources in improving the quality of life of individuals and families affected by sickle cell disease. It engages in evidentiary advocacy on their behalf with the government, schools, and the healthcare system. We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Ontarians living with sickle cell disease—and ultimately to find a universal cure for this devastating disease.


Quick Links

Contact

Address: 330-5109 Steeles Ave W.
North York, ON , M9L 2Y8


Phone: GTA: 416-745-4267


Email: info@sicklecellanemia.ca

Got a Question?

Want to Support Us?

© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001

Contact

Address: 330-5109 Steeles Ave W.
North York, ON M9L 2Y8


Phone: 416-745-4267


Email: info@sicklecellanemia.ca

Got a Question?

Want to Support Us?

© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001

Quick Links

Contact

Address: 330-5109 Steeles Ave W.

North York, ON M9L 2Y8


Phone: 416-745-4267


Email: info@sicklecellanemia.ca

Got a Question?

Want to Support Us?

© SCAGO - All Rights Reserved -Disclaimer - Charitable Registration #: 83332 0872 RR 0001