Sickle Cell Disease-Modifying Therapies| 08/29/2020
In this video, Dr. Ziad Solh from the Victoria Hospital, London, ON provided a comprehensive presentation on SCD Modifying Therapies.
Reducing Sickle Cell Related Stigma| 09/19/2020
A rich panel of experts including Dr. Madeleine Verhovsek (McMaster Children Hospital), Dr. Jennifer Bryan (University Health Network), Mr. Kavan Fudge Layne (peer with SCD), and Ms. Lynella Welcome (peer with SCD) provided their candid perspectives on the stigma and discrimination experienced by Canadians living with SCD.
Building Communities: Patients and families living with sickle cell disease and Emergency Department care providers at the University Health Network | 11/07/2020
A panel of patient experts including Gabriel Badejo and Fitz-Ann Howell shared the type of care they received at the University Health Network (UHN) and care providers provided what they are doing to improve patients’ narratives.
Led by the Counsel Public Affairs firm, SCAGO’s board of Directors and the Patient Advisory and Advocacy Counsel provided the much-needed education on Ontario Government Advocacy.
Sickle Cell Disease and COVID-19 Vaccination| 01/16/21
The chief of infectious diseases at the SickKids hospital, Dr. Allen Upton shed more light on Pfizer and Moderna COVID-19 vaccines.
Treating Sickle Cell Disease in Ontario Hospitals- What We Want Care providers to know| 02/27/21
A must-watch presentation from an individual and caregiver affected by SCD and an expert lecture from Drs. Odame and Verhovsek on what care providers need to know about treating patients with SCD in our hospitals.
Sickle Cell Disease, Blood Transfusion, and COVID-19| 03/27/21
Dr. Jacob Pendergrast presented Blood Transfusions as a life-saving therapy for some individuals with sickle cell disease including those that may not be a candidate for Hydrea. He also touched on the impact of COVID-19 on sickle cell disease. Canadian Blood Services’ donor relations manager, Kristie Upton, and Sam Tunji-Ajayi, a blood champion of 4+ years jointly delivered on how to become a blood donor.
Newly Approved Therapies and Therapies in Development| 04/24/21
A global panelist of experts including Dr. Isaac Odame, Dr. Kevin Kuo, Dr. Donna Wall, Dr. Greg Guicher, and Dr. Guarav Kharya delivered a world-class presentation on various topics ranging from Drug/therapy access from a Canadian and global perspective to gene therapy to bone marrow transplantation both in high resource and low resource countries.
Thrombosis in SCD and Blood Clots from COVID-19 Vaccines| 05/22/21
World recognized experts on infectious diseases, Dr. Upton Allen and hemoglobinopathies, Dr. Isaac Odame provided clarity on COVID-19 vaccines and Blood clots in SCD.
Stroke Prevention and Management in Sickle Cell Disease| 05/29/21
Drs. Uma Athale from McMaster Medical Centre and Suzan Williams from SickKids hospital provides an easy-to-understand presentation on stroke prevention and management in sickle cell disease.
Medical Management of Sickle Cell Disease: Pain Management and Opioids| 06/11/21
Dr. Jacob Pendergrast working out of the largest adult sickle cell program at the University Health Network and Dr. Melanie Kirby-Allen, who co-leads the largest pediatric sickle cell program in Canada provides extensive lecture to care providers on pain management and opioids
World Sickle Cell Day- Global Dialogue on Sickle Cell Disease| 06/19/21
An impressive slate of global advocates converged on June 19 to discuss SCD best practices, challenges, and successes as related to their countries and regions.
Sickle Cell Disease and Lung Health| 07/31/21
Dr. Smita Pakhalè from the Division of Respiratory Medicine at The Ottawa Hospital and Dr. McLaren Barnett of the Division of Respirology at McMaster University shared their insights and strategies for improving lung function for those with sickle cell disease.
Advocacy 102| 08/07/21
As a follow-up to Advocacy 101 training, SCAGO facilitated Advocacy 102 for its board and volunteers. The training was provided by Counsel Public Affairs and moderated by Mrs. Lanre Tunji-Ajayi, SCAGO President and CEO.
Ask The Experts QA: COVID 19 Vaccines, Fertility & Reproductive Health | 09/25/21
OGBYN Dr. Tunde-Byass gives an overview of the facts surrounding COVID-19 Vaccines and reproductive health and fertility while answering user-submitted and live questions in regards to this topic.
Achieving Success in Post-Secondary Education | 10/23/21
This session covered strategies for achieving post-secondary success for youth with sickle cell disease. Panelists discussed accommodation for students with sickle cell disease, and mental wellness through the post-secondary transition, and two panelists shared their personal experiences navigating post-secondary education with sickle cell disease. The session was followed by the presentation of SCAGO’s 2021 scholarship grants to this year’s awardees, including the Sunday Afolabi Scholarship Grant and the Sholape Animashawun Scholarship Grant.
Sickle Cell Disease Summit 2021 | 11/05/21-11/06/21
During the Sickle Cell Disease Summit 2021 held on November 5th and 6th, 2021, the Sickle Cell Awareness Group of Ontario brought together provincial, national, and international SCD patient community, healthcare professionals, and health system leaders. We heard from the Ontario patient community about the quality of care they are currently receiving and from the top Ontario hospitals about how they are improving sickle cell care in the province.
Mental Health – The Neglected Side of Sickle Cell | 02/26/22
In this session, Dr. Deji Ayonrinde and Dr. Bola Ola discussed the current state of mental illness in the sickle cell community and ways to increase awareness and attention around the mental well-being of those diagnosed with sickle cell.
Vaccine Hesitancy Panel Discussion | 03/26/22
In this Sickle Cell Awareness Group of Ontario Learning for Life session, a panel of interprofessional experts discussed the issue of vaccine hesitancy within SCD/Black communities. Attendees had their concerns and questions addressed regarding COVID-19 vaccines and sickle cell disease.
COVID-19 Disparity Webinar | 04/30/22
In this COVID-19 webinar, Dr. Upton Allen, Chair, Infectious Diseases at SickKids, highlighted the disparity that exists with COVID-19 and the impact of this on individuals with sickle cell disease and the Black community. It’s a must-watch!
Clinical Trials and Transplantation | 05/28/22
The patient and clinician panelists share their perspectives on bone marrow transplants with an in-depth review of the clinical trials of bone transplants and sickle cell disease.
World Sickle Cell Day Global Advocacy Training| 06/25/22
An informative session on advocacy best practices for global sickle cell disease patient organizations and community members
Kidney Health and Sickle Cell Disease | 07/09/22
Dr. Jacob Pendergrast, Dr. Istvan Musci, Dr. Pearl Masebe, and Ms. Aljeena Qureshi provide an informative session on Kidney Health and Sickle Cell Disease. They explain what the kidneys do, the risk factors/symptoms of kidney disease, how kidney disease is treated, and speak about the kidneys in the context of Sickle Cell Disease.
Kidney Health And Sickle Cell Disease Webinar
Kidney Health and Sickle Cell Disease
World Sickle Cell Day Global Advocacy Training