Adeniyi Sodiq Omisore

Youth with sickle cell disease (SCD) face challenges their peers without the disease may never know. These challenges range from missing days of school, to not able to participate in some physical activities to experiencing stigma due to delayed puberty, stroke, yellow eyes, bone and joint damage, and frequent hospitalizations, etc.
Furthermore, due to sickle cell disease complications, some may not be able to achieve as they would like to and underachievement may also trigger anxiety, fear, and other mental health-related issues.
The Sickle Cell Awareness Group of Ontario is proud to offer Piano and French lessons to youths living with Sickle Cell Disease.
SCAGO is partnering with one of our volunteers to provide virtual tutoring via SCAGO’s Zoom platform for up to 6 children (between the ages of 4-10) per week and in-person piano tutoring for 2-4 children weekly.
Terms
To register, click this link
Youth must also be educated on the importance of optimal disease management activities inclusive of taking prescribed medications, drinking fluids, avoiding extreme changes in temperature, eating a well-balanced diet, and engaging in behaviors that help prevent infections (e.g. hand washing, avoiding children who are sick).
It is also important to note that individuals with sickle cell disease are not cut out for strenuous, physical work- as such, emphasis must be placed on excelling academically.
For school-related resources on sickle cell disease, visit: https://sicklecellanemia.ca/schools
This page is dedicated to youth in their journey with sickle cell disease.
Where family members/caregivers are not sure if psychological help is necessary, a professional assessment should be sought, to make sure the youth is not in danger of mental illness and to ensure improved quality of life, it is important that family members/caregivers nurture their youth by providing assurance, guidance, and evidence-informed support.
Past Webinars: Videos & Presentations on Sickle Cell Disease | 01/14/23
In this Webinar, Dr. Upton Allen, Professor of Paediatrics at the University of Toronto, and Thea Campbell, SCAGO Social Worker, discuss the post-COVID-19 Landscape and how it impacts those living with Sickle Cell Disease
Watch Here
Satellite Symposium: Clinical Trials and Research: Ensuring Patients and Researchers’ Values Align
scagovids 4 views December 5, 2022 9:32 am
Closing Remarks
scagovids 2 views December 5, 2022 9:12 am
Simultaneous Session 6: 1. Psychological Predictors of SCD in Pediatric & Adult Patients
scagovids 1 views December 5, 2022 8:47 am
Patient's Role in Driving Health Equity
scagovids 13 views December 5, 2022 8:26 am
Session 5 Human Rights Equity with Liza Arnason and Lila Refaie
scagovids 49 views December 5, 2022 7:56 am
Simultaneous Session 4 Pregnancy in sickle cell disease Improving maternal outcomes globally
scagovids 2 views December 5, 2022 7:33 am
Simultaneous Session 3 ED Nurses and Their Impact on Patients Living with Sickle Cell Disease
scagovids 3 views December 5, 2022 12:18 am
Anti-Black Racism as a Social Determinant of Health The Impact of Racism on Sickle Cell Disease
scagovids 6 views December 4, 2022 11:24 pm
Fetal hemoglobin in Sickle Cell Disease Hydroxyurea and beyond (Dr.Robert Klaasen)
scagovids 9 views December 4, 2022 10:40 pm
Keynote address Bridging the Health Equity Gap in Canada
scagovids 27 views December 4, 2022 8:50 pm
Quality Standards in Sickle Cell Disease Ontario Health Report
scagovids 8 views December 4, 2022 7:52 pm
Welcoming Address - Day 1
scagovids 3 views December 4, 2022 6:43 pm
Canadian Blood Services Barriers to Equity in Blood Donation & Pathways Forward
scagovids 3 views December 28, 2022 3:38 am
Session 5c Innovative Use
scagovids 6 views December 28, 2022 3:36 am
Simultaneous Session 1 Hyperhemolysis What It Is, How To Treat It, How To Prevent it Dr Pendergrast
scagovids 15 views December 28, 2022 3:35 am
Simultaneous Session 3 Experiences of Innovating Patient Education
scagovids 6 views December 28, 2022 3:34 am
The Role of Policymakers in Advancing Health Equity in Sickle Cell Disease in Ontario MPPCuzzetto
scagovids 3 views December 28, 2022 3:33 am
Mental Health and Sickle Cell Disease Panel
scagovids 4 views December 28, 2022 3:32 am
Curative Treatments for Sickle Cell Disease
scagovids 12 views December 28, 2022 3:31 am
Session 7 Closing Remarks
scagovids 5 views December 6, 2022 2:38 am
Digital and Behavioral Interventions in Sickle Cell Disease
scagovids 1 views December 6, 2022 12:31 am
Simultaneous Session 2 Organ Failure in Sickle Cell Disease A comparative analysis of North America
scagovids 7 views December 5, 2022 11:44 pm
Session 1 Welcoming Address
scagovids 3 views December 5, 2022 8:29 pm
In 2005, the Sickle Cell Awareness Group of Ontario (SCAGO) introduced the Hope Gala & Awards to honor the many heroes who have contributed relentlessly to the advancement of sickle cell disease (SCD) from different fronts. Close to two-decade after, the organization is still recognizing new and old heroes from across the country.
Among many others, past guests of the Hope Gala & Awards include
Lanre Tunji-Ajayi, president of the Sickle Cell Anemia Group of Ontario has been advocating for the need to lower the barriers to blood donations, especially for Black and African-Canadian people. “Blood from black communities is like gold to Canadian Blood Service,” she says. However, she notes, it is CBS’ own rules that limit the supply of blood from Black and African-Canadian communities. Read more here.