SCAGO
Do you, or does someone you know have Sickle Cell Disease (SCD)?
Do you feel like no one understands what it’s like to struggle with sickle cell disease?
Would you like to connect with others who will understand?
Are there issues at school, work, or in the emergency room that cause you anxiety?
Do you need more information about sickle cell disease?
SCAGO is a membership-based, patient support, and advocacy organization. We put patients and families affected by sickle cell disease first, by advocating on their behalf with the government, schools, and the healthcare community. We understand your challenges and we are here to provide support.
EDUCATION:
We host Learning for Life Seminars for our members on topics such as “Post-Secondary Planning” and “sickle cell disease Research Updates”.
We participate in Community Events, raise awareness about sickle cell disease and educate at-risk communities.
We work with sickle cell disease experts to educate and update health care providers about managing sickle cell disease.
GRANTS:
We award annual Post-Secondary Scholarships to students with sickle cell disease who have secured a place in tertiary education.
We also offer small emergency grants to patients, to help offset financial emergencies when their need is greatest.
SUPPORT
We support and empower patients and their families through Adult Peer and Parents Support Networks. Our members meet bi-monthly but also have a vibrant online community support network. Our most recent program helps individuals and families access Respite Care in times of greatest need.
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