Day 1 – Sickle Cell Summit 2023 Official Opening: Welcome & Keynote Address
Lanre Tunji-Ajayi, M.S.M | President/CEO, SCAGO |
Melissa Gordon-Pitts, LCSW, ACM-SW | Duke University Hospital |
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Day 1 – Sickle Cell Summit 2023 Opening Plenary Session: Multi-Prong Approach to Advocating for People with Sickle Cell Disease
Moderated by: Delaney Hines, MPH, MBA | SCAGO |
Speakers: Senator Jane Cordy | Senate of Canada
Dr. Ziad Solh | London Heath Sciences Centre |
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Day 1 – Sickle Cell Summit 2023 Clinical Track 1: Beyond Hydroxyurea: Other Emerging Therapies
Moderated by: Dr. Soji Jemitola, MBBS; G.D. SRS | SCAGO |
Speakers: Dr. Kevin Kuo, MD, MSc, FRCPC | University Health Network |
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Day 1 – Sickle Cell Summit 2023 Advocacy Track 1: Racism and Micro-Aggressions in the Health System: What Patients Need to Do
Moderated by: Dr. Madeline Verhovsek, MD, FRCPC | McMaster University |
Speakers: Dr. Ewurabena Simpson | CHEO |
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Day 1 – Sickle Cell Summit 2023 Psychosocial Track 1:
Topic: Dealing with Depression, Anxiety, and the Cognitive Impacts of Sickle Cell Disease
Topic: Neurocognitive, Neuropsychiatric, and Neurodiversity Factors in Sickle Cell Disease
Moderated by: Dr. Sarah Patterson, MD, FRCPC | Hamilton Health Sciences
Speakers: Dr. Laura Janzen Ph.D., C.Psych., ABPP-CN | Hospital for Sick Children |
Dr. Emily MacKillop, PhD, CPsych, ABPP-CN | St. Joseph’s Healthcare Hamilton |
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Day 1- Sickle Cell Summit 2023 Clinical Track 2A:
Topic: Acute and Chronic Pain Management
Topic: Sickle Cell Disease: Beyond the Acute Pain
Moderated by: Sanjeev Wadhwani | Chair, Board of Directors, SCAGO
Speakers: Dr. Jacob Pendergrast, MD | University Health Network |
Dr. Christine Lamontagne, MDCM, FRCPC | Children’s Hospital of Eastern Ontario |
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Day 1 – Sickle Cell Summit 2023 Clinical Track 2B: Organ Damage in Sickle Cell Disease: Prevention, Management and Cure
Moderated by: Ika Washington MSc., BSc | Diversity Talk
Speaker: Dr. Robert Klassen, MD FRCPC | CHEO |
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Day 1 – Sickle Cell Summit 2023 Psychosocial Track 2:
Topic: Self-Management Tools – Apps and Digital Platforms
Topic: Investigating the Transitionary Process from Pediatric to Adult Care and Improving Transitional Readiness for Youth
Moderated by: Dr. Dana Powell, MD, PHD | SCAGO |
Speakers: Dr. Kofi Anie PhD | London North West University Healthcare NHS Trust |
Geil Astorga BA MHSc, Peola Ellis BHSc, MHSc, Fairuz Karim MHSc, MHSc, Jaspreet
Randhawa HBSc, MHSc, MMSc Candidate | University of Toronto |
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Day 1 – Sickle Cell Summit 2023 Special Plenary: A Follow Up with Ontario Hospitals on Quality Care for Sickle Cell Disease-Are There Still Gaps to Be Addressed?
Moderated by: Lanre Tunji-Ajayi M.S.M | President/CEO, SCAGO |
Speakers: Dr. Kevin Kuo, MD, MSc, FRCPC | University Health Network |
Dr. Jennifer Bryan, MD, MSPH, MA, FRCP | University Health Network |
Beatrice Kahenya, MScN, PHC-NP | William Osler Health System – Brampton Civic
Hospital |
Dr. Andrea Cervi, MSc, MD | Windsor Regional Hospital |
Dr. Uma Athale, MD | McMaster Children’s Hospital |
Dr. Sarah Patterson, MD, FRCPC | Hamilton Health Sciences |
Dr. Ziad Solh, MD MSc FRCPC DRCPSC | London Health Sciences Centre |
Sarah Rachid, MSW, RSW | Hamilton Health Sciences |
Dr. Alan Tinmouth, MD | Ottawa Hospital |
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Day 1 – Sickle Cell Summit 2023 Equity Plenary: Mental Health, Intersectionality and Sickle Cell Disease
Moderated by: Dr. Ewurabena Simpson
Speaker: Dr. Oyedeji Ayonrinde |
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Day 1 – Sickle Cell Summit 2023 Closing Plenary: From Health Canada Submission to Public Reimbursement: Learn the evaluation and reimbursement processes for drugs and medical devices in Canada and How Canadian Agency for Drugs and Technologies in Health (CADTH) engages
Moderated by: Delaney Hines, MPH, MBA | SCAGO |
Speakers: Sudha Kutty, BSc, LL. B, MBA | CADTH |
Heather Logan, MHSC | CADTH |
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Day 2 – Sickle Cell Summit 2023 Collaborative Plenary | Ontario Health Sickle Cell Disease Quality Standard: Working Together to Improve Care
Moderated by: Karen Fleming, CNS, MN, MSHS, BScN | University Health Network | SCAGO |
Speakers: Karine Baser, HBSc MHA | Ontario Health, Clinical Improvement and Informatics |
Carol Kennedy, BScPT, MSc | Ontario Health, Clinical and Quality Standards |
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Day 2 – Sickle Cell Summit 2023 Special Plenary: Cannabis and Sickle Cell Care
Topic: Cannabis in Care: Patient-Centered Perspectives on Managing Symptoms
Topic: Cannabis for Management of Acute and Chronic Pain
Moderated by: Florence Sevensma | Media, SCAGO |
Speakers: Ika Washington MSc., BSc | DiversityTalk |
Shan Mei T Young, NP-PHC, MScN |
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Day 2 – Sickle Cell Summit 2023 Clinical Track 1A: Inpatient Experience When Accessing Treatment- A Conversation with Patients with Lived Experience of Sickle Cell Disease
Moderated by: Stefan Branov
Speakers: Fitz-Ann Howell | Co-chair, Patient Advisory and Advocacy Council (PAAC), SCAGO |
O’Gina Mitchell, B.A | Lived experience speaker |
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Day 2 – Sickle Cell Summit 2023 Clinical Track 1B: Leveraging Educational Technology to Reduce Barriers to Care in Sickle Cell Disease
Moderated by: Moyinoluwa Ajibade, RN | Trillium Health Partners |
Speaker: Karen Fleming, CNS, MN, MSHS, BScN | University Health Network | SCAGO |
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Day 2 – Sickle Cell Summit 2023 Advocacy Track 1:
Topic: Advocating for Financial Supports in Sickle Cell Disease
Topic: Sickle Cell Disease and Income Supports in Ontario
Moderated by: James Bradley
Speakers: Lembi Buchanan, M.S.M | Fighting for Fairness |
Sinthu Srikanthan, RSW, MSW, BSW, BA | University Health Network |
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Day 2 – Sickle Cell Summit 2023 Psychosocial Track 1:
Topic: Non- Pharmacological Management of Sickle Cell Pain
Topic: Lived Experience of Non-Pharmacological Management of Sickle Cell Pain
Moderated by: Amos Tunji-Ajayi, MPH | Education Coordinator, SCAGO |
Speakers: Beatrice Kahenya, MScN, PHC-NP | William Osler Health System – Brampton Civic
Hospital |
Lance Archer, M.A. | PAAC Chair, SCAGO |
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Day 2 – Sickle Cell Summit 2023 Advocacy Track 2: Effective Advocacy with Governments, Hospitals, and Workplaces
Topic: General Principles of Advocacy That Gets Your Points Across
Topic: Sickle Cell Disease in the Workforce – What Should You Reveal from the Get Go?
Moderated by: Dr. Soji Jemitola, MBBS; G.D. SRS | SCAGO |
Speakers: Devan Sommerville | Counsel Public Affairs| Harprit Gill |
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Day 2 – Sickle Cell Summit 2023 Clinical Track 2: Transfusion Medicine in Sickle Cell Disease
Moderated by: Dr. Madeline Verhovsek, MD, FRCPC | McMaster University |
Speakers: Dr. Aditi Khandelwal, MDCM, MSc, FRCPC | Canadian Blood Services |
Juliet Uchegbue | Lived experience speaker |
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Day 2 – Sickle Cell Summit 2023 Psychosocial Track 2: Navigating Love and Relationships with Sickle Cell Disease
Moderated by: Tanya Elese | Southeastern Coordinator, SCAGO |
Speakers: Dr. Sandra Newton, PHD | Psychology Clinician, SCAGO |
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Industry Alliance Symposium – Solving the Access to Innovative Therapies Puzzle:
A Discussion Among Clinicians, People with Lived Experience, and the Industry
Moderated by: Lanre Tunji-Ajayi, M.S.M | President/CEO, SCAGO |
Speakers: Dr. Aisha Bruce | Stollery Children’s Hospital |
Dr. Ewurabena Simpson | Children Hospital of Eastern Ontario |
Mary Oduwole | Co, chair, Patient Advisory and Advocacy Council, SCAGO |
Adenike Oladunmoye | Pfizer Inc |
Zoraïda Saoudi | Novo Nordisk Canada |
Shereese Maragh, RN, BScN | Lived experience speaker |
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