Natalie Zur Nedden, Ph.D., Clinical Research Associate, The Ottawa Hospital Research Institute | Institut de recherche de l’Hôpital d’Ottawa– The conference was informative, well organized and presented diverse pertinent content. I got more than my money’s worth from the summit. Outstanding work, SCAGO team!
Deborah Drummond- I attended as someone who suffers from SCD. I enjoyed that the summit was packed with presenters who spoke about several different aspects of SCD. Having topics relevant to my lived experiences including racism was refreshing because it validates us and our stories. I also thought having a session on the mental health impact of living with chronic illnesses helped to validate and normalized the complex impact of SCD on all aspects of our lives. I look forward to reviewing the sessions again to pick up more information and strategies for living and managing SCD
Sinthu Srikanthan social worker at the University Health Network’s Red Blood Cell Disorders Clinic- 2022 Sickle Cell Summit: A Social Worker’s Perspective
I was extremely privileged to attend and help plan SCAGO’s 2022 Sickle Cell Summit.
I was most impacted by Thea Campbell’s story – it was very powerful to hear how Thea uses her lived experiences to provide professional psychosocial support to people with Sickle Cell Disease. I think that there should be more opportunities for people with Sickle Cell Disease to provide this invaluable support to the community.
I also greatly appreciated the sessions on Anti-Black Racism as well as Disability Rights. From medical care to employment, these discussions firmly locate many of the challenges faced by people with Sickle Cell Disease as a matter of Human Rights!
By attending the Sickle Cell Summit, I feel more equipped to support people with Sickle Cell Disease with an equity lens. Everyone should attend the Summit to learn more about sickle cell disease from diverse perspectives and be connected to a community of practice and care!