Summit-2022 Day Videos

Satellite Symposium: Clinical Trials and Research: Ensuring Patients and Researchers’ Values Align

Over the years, patients have been seen and tagged as subjects in research. More recently, there has been a shift to using more preferable terms such as partner or stakeholder in research; but are we there yet?

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Closing Remarks

Closing Remarks

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Simultaneous Session 6: 1. Psychological Predictors of SCD in Pediatric & Adult Patients

A review of the literature.2. A quality improvement intervention for decreasing time to pain medication in sickle cell disease (Lance Archer, Renée Bailey) Part 1 is a review of the current research literature on predictors of pain in adults and children living with sickle cell disease. Part 2 is a presentation of the early findings of an emergency department quality improvement initiative on optimizing time to pain medication in sickle cell disease.

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Patient's Role in Driving Health Equity

Simultaneous Session 5: 1 Patients’ Role in Driving Health Equity 2 Educational and professional achievement while living with SCD (Session 6b)

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Session 5 Human Rights Equity with Liza Arnason and Lila Refaie

Session 5 Human Rights Equity with Liza Arnason and Lila Refaie

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Simultaneous Session 4 Pregnancy in sickle cell disease Improving maternal outcomes globally

Simultaneous Session 4 Pregnancy in sickle cell disease Improving maternal outcomes globally

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Simultaneous Session 3 ED Nurses and Their Impact on Patients Living with Sickle Cell Disease

Unconscious Bias: The Challenges of Behavior and Emotions – A Patient’s Lived Experience (Nia Navarro & Serena Thompson) Part 1 explores the opportunities for nurses to improve the emergency department care of
patients living with sickle cell disease. Part 2 is a first-person perspective on the impacts of bias on the experiences of those living with sickle cell disease.

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Anti-Black Racism as a Social Determinant of Health The Impact of Racism on Sickle Cell Disease

Though sickle cell disease affects people of all races, in Canada, most of those affected are Black. In this session, we will explore the impact of anti-Black racism as a social determinant of health in sickle cell disease. (Dr. Ewurabena Simpson)

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Fetal hemoglobin in Sickle Cell Disease Hydroxyurea and beyond (Dr.Robert Klaasen)

Increasing the proportion of fetal hemoglobin has significant beneficial effects on sickle cell disease; hydroxyurea has become a mainstay of treatment. In this session, we'll explore the current understanding of fetal hemoglobin and its link to therapeutic approaches.

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Keynote address Bridging the Health Equity Gap in Canada

A socio-cultural perspective on health equity in the Canadian context delivered by Dr. Eve Dubé.

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Quality Standards in Sickle Cell Disease Ontario Health Report

An introduction to the upcoming Ontario Health quality standard for care of people with sickle cell disease. This quality standard outlines what quality care looks like for people of all ages with sickle cell disease based on the best available evidence and with input from clinicians and people with lived experience.

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Welcoming Address - Day 1

Welcome Address by Summit Co-Chairs, Karen Fleming and Jennifer Bryan,
PAAC Chair, Lance Archer and SCAGO CEO Lanre Tunji-Ajayi

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Canadian Blood Services Barriers to Equity in Blood Donation & Pathways Forward

Barriers to equity in blood donation are particularly relevant in sickle cell disease. In this session, Canadian Blood Services will explore the past and present of these barriers and potential steps to advance equity in the future.

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Session 5c Innovative Use

Simultaneous Session 6: Innovative Use of Simulation to Reduce Barriers Experienced by Individuals with Sickle Cell Disease Presenting to the Emergency Department

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Simultaneous Session 1 Hyperhemolysis What It Is, How To Treat It, How To Prevent it Dr Pendergrast

Hyperhemolysis is a serious life-threatening complication of red blood cell transfusion in sickle cell disease. In this session, a leading expert hematologist provides a practical approach to hyperhemolysis for healthcare providers.

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Simultaneous Session 3 Experiences of Innovating Patient Education

An introduction to a new patient education innovation created by the Red Blood Cell Disorders Clinic team at Toronto General Hospital. It focuses on a new patient-centered blog, established to build a virtual community of patients, family members, and healthcare providers in order to improve the lives of those with sickle cell disease.

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The Role of Policymakers in Advancing Health Equity in Sickle Cell Disease in Ontario MPPCuzzetto

In 2021, MPP Khanjin and MPP Cuzzetto co-sponsored a bill to proclaim June 19th each year as Sickle Cell Awareness Day in Ontario to raise awareness in schools, workplaces, and hospitals across Ontario. In this session, they will speak on the role of policymakers in advancing health equity in sickle cell disease.

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Mental Health and Sickle Cell Disease Panel

Mental health is an often overlooked but key component of quality of life in sickle cell disease. In this expert panel discussion, we will explore what is known about the mental health implications of living with sickle cell disease and the most up-to-date recommendations for the promotion of mental wellbeing in sickle cell disease.

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Curative Treatments for Sickle Cell Disease

A facilitated panel discussion on the past, present, and future of curative treatment options for sickle cell disease. Featuring local and international experts and a community advocate with lived experience as the parent of children with sickle cell disease. Simultaneous Session 4: Digital and Behavioral Interventions in Sickle

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Session 7 Closing Remarks

Session 7 Closing Remarks

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Digital and Behavioral Interventions in Sickle Cell Disease

How can mobile technology increase engagement in care for those living with sickle cell disease? A discussion of how technological innovation can help patients, in particular children, manage their symptoms and medications.

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Simultaneous Session 2 Organ Failure in Sickle Cell Disease A comparative analysis of North America

Organ failure is a life-threatening and high-morbidity complication of sickle cell disease. This session will offer perspectives on the prevention and management of organ failure from hematology experts in Canada and the Middle East.

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Session 1 Welcoming Address

Session 1 Welcoming Address

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