From 2005-2007, SCAGO conducted a community-based study to better understand the perception of sickle cell disease within the most affected communities.
With no patient registry, it becomes imperative that SCAGO, in the minimum knows the number of affected in Ontario
Many individuals with SCD in the province are branded as drug seekers as a result of limited knowledge of the disease by care providers. This study will allow us to identify and support such as hospitals providing sub-optimal care to patients in Ontario. Report on the study coming soon