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Past Webinars: Videos & Presentations on Sickle Cell Disease – 2024

Innovative Cures for Sickle Cell Disease and the Drug Approval Process in Canada | 02/24/2024 In this webinar, Dr. Donna Wall... read more

Sickle Cell Disease Association founder awarded Meritorious Service Medal

Mrs. Lanre Tunji-Ajayi, founder and president of the Sickle Cell Awareness Group of Ontario (SCAGO), received the Meritorious Service Medal... read more

Historical barriers deterring black donors from adding to Canadas diverse blood supply

Black Canadians face historical barriers in donating blood, affecting the diversity of Canada's blood supply. Canadian Blood Services has updated... read more

Engaging Your Community Toolkit

Black History Month and Sickle Cell Disease

In the spirit of Black History Month, let’s set aside an epoch of reflection and engage in the celebration of... read more

Vaccine Equity in SCD Study

Vaccine Equity in SCD Study Now open to participation. Given the wide-ranging reasons for vaccine hesitancy, there is a strong need for... read more

Vaccine Equity in Sickle Cell Disease

Vaccine Equity in Sickle Cell Disease (SCD) Project The SCAGO (Sickle Cell Awareness Group of Ontario), a leading patient advocacy and... read more

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March 2024

Past Webinars: Videos & Presentations on Sickle Cell Disease – 2024

Innovative Cures for Sickle Cell Disease and the Drug Approval Process in Canada | 02/24/2024 In this webinar, Dr. Donna Wall and patient advocates Victoria Gray and Gabriel Bodega share clinical evidence and first-person accounts of groundbreaking gene therapies to treat Sickle Cell Disease. Dr. Matthew McDonald explains the drug reimbursement process by the Canadian Agency for Drugs and Technologies in Health (CADTH). Watch Here

Sickle Cell Disease Association founder awarded Meritorious Service Medal

Mrs. Lanre Tunji-Ajayi, founder and president of the Sickle Cell Awareness Group of Ontario (SCAGO), received the Meritorious Service Medal for her work in sickle cell anemia awareness. She is lobbying for approval of new treatments in Canada, including Casgevy and Lyfgenia, which are already approved in the US. These breakthrough therapies represent a significant advancement in treating sickle cell disease, potentially reducing lifetime treatment costs and improving patients' quality of life. Link: https://thecaribbeancamera.com/lanre-tunji-ajayi-awarded-meritorious-service-medal-sickle-cell-treatments-canada/

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Past Webinars: Videos & Presentations on Sickle Cell Disease – 2024

Innovative Cures for Sickle Cell Disease and the Drug Approval Process in Canada | 02/24/2024 In this webinar, Dr. Donna Wall and patient advocates Victoria Gray and Gabriel Bodega share clinical evidence and first-person accounts of groundbreaking gene therapies to treat Sickle Cell Disease. Dr. Matthew McDonald explains the drug reimbursement process by the Canadian Agency for Drugs and Technologies in Health (CADTH). Watch Here

Sickle Cell Disease Association founder awarded Meritorious Service Medal

Mrs. Lanre Tunji-Ajayi, founder and president of the Sickle Cell Awareness Group of Ontario (SCAGO), received the Meritorious Service Medal for her work in sickle cell anemia awareness. She is lobbying for approval of new treatments in Canada, including Casgevy and Lyfgenia, which are already approved in the US. These breakthrough therapies represent a significant advancement in treating sickle cell disease, potentially reducing lifetime treatment costs and improving patients' quality of life. Link: https://thecaribbeancamera.com/lanre-tunji-ajayi-awarded-meritorious-service-medal-sickle-cell-treatments-canada/

Historical barriers deterring black donors from adding to Canadas diverse blood supply

Black Canadians face historical barriers in donating blood, affecting the diversity of Canada's blood supply. Canadian Blood Services has updated policies to encourage donations, but challenges remain in overcoming past rejections and cultural perceptions. Collaborations with groups like SCAGO aim to increase participation from ethnically diverse communities, crucial for treating conditions like sickle cell anemia. Read more https://www.cbc.ca/news/canada/ottawa/historical-barriers-deterring-black-donors-from-adding-to-canada-s-diverse-blood-supply-1.7127269. Link: Historical' barriers deterring Black donors from adding to Canada's diverse blood supply | CBC News

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Past Webinars: Videos & Presentations on Sickle Cell Disease – 2024

Innovative Cures for Sickle Cell Disease and the Drug Approval Process in Canada | 02/24/2024 In this webinar, Dr. Donna Wall and patient advocates Victoria Gray and Gabriel Bodega share clinical evidence and first-person accounts of groundbreaking gene therapies to treat Sickle Cell Disease. Dr. Matthew McDonald explains the drug reimbursement process by the Canadian Agency for Drugs and Technologies in Health (CADTH). Watch Here

Sickle Cell Disease Association founder awarded Meritorious Service Medal

Mrs. Lanre Tunji-Ajayi, founder and president of the Sickle Cell Awareness Group of Ontario (SCAGO), received the Meritorious Service Medal for her work in sickle cell anemia awareness. She is lobbying for approval of new treatments in Canada, including Casgevy and Lyfgenia, which are already approved in the US. These breakthrough therapies represent a significant advancement in treating sickle cell disease, potentially reducing lifetime treatment costs and improving patients' quality of life. Link: https://thecaribbeancamera.com/lanre-tunji-ajayi-awarded-meritorious-service-medal-sickle-cell-treatments-canada/

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