Partnerships

Ottawa Hospital Research Institute: A study about clinical trial participation in Sickle Cell Disease

English
We are conducting an online survey with those who have Sickle Cell Disease or have a child/family member with the disease. The survey asks about attitudes towards health research and participation in clinical trials. This work is in collaboration with the Sickle Cell Awareness Group of Ontario, The Ottawa Hospital Research Institute, and Clinical Trials Ontario. The survey will ask questions about your knowledge of clinical trials, as well as what you think are the most important barriers and drivers to participation in clinical trials. If you are interested in participating, click on the link below https://ktcanada.ohri.ca/SCSurvey/

French
Nous menons un sondage en ligne auprès des personnes atteintes de drépanocytose ou dont un enfant ou un membre de la famille est atteint de cette maladie. Ce sondage porte sur les attitudes à l’égard de la recherche en santé et de la participation aux essais cliniques. Ce travail s’effectue en collaboration avec le Groupe de sensibilisation à la drépanocytose de l’Ontario, l’Institut de recherche de l’Hôpital d’Ottawa, et Essais cliniques Ontario. Ce dernier comporte des questions touchant votre connaissance sur les essais cliniques, en plus de permettre d’identifier les éléments qui, selon vous, entravent ou favorisent la participation aux essais cliniques.Si vous souhaitez participer, veuillez cliquer sur le lien ci-dessous: https://ktcanada.ohri.ca/SCSurvey/


Clinical Trials Ontario
SCAGO is pleased to continue collaboration with Clinical Trials Ontario (CTO) whose vision is to make Ontario a preferred location for global clinical trials while maintaining the highest ethical standards.

SCAGO and similar organizations joined CTO to develop the clinical trial fact sheet.

For more on CTO, Click here


The CeDar Study-Living with Sickle Cell Disease across the lifespan
Participant Information
Nipissing University would like to invite you to take part in this study. This study aims to collect stories of people living with sickle cell disease (SCD), their experiences of everyday life, and how they navigate and negotiate care. This study will involve interviewing participants (via the virtual platform) about their everyday life, the impact of their health conditions on their life, and their experiences of accessing and interacting with healthcare services. Please take your time in reading this leaflet