In 2010, the Sickle Cell Awareness Group of Ontario in collaboration with the Thalassemia Foundation of Canada sought MP. Kirsty Duncan’s support to introduce a National Bill for Sickle Cell Disease and Thalassemia Disorders.
Bill C-605- An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders was introduced and made first reading in the House of Parliament on December 13th, 2010 during the 40th Parliament.
For more on Bill C-605, click here
During the 41st Parliament, Hon. Kirsty Duncan re-introduced Bill C-605 as Bill C-221-An Act respecting a comprehensive national strategy for sickle cell and thalassemic disorders
For more on Bill C-221, click here
In 2012, the Sickle Cell Awareness Group of Ontario and the Thalassemia Foundation of Canada met with MPP. Mike Colle asked him to introduce a Bill to support individuals with Sickle Cell Disease and Thalassemic Disorders in Ontario.
On June 7th, 2012, MPP. Mike Colle introduced Bill 105- An Act to establish Sickle Cell and Thalassemia Care Ontario and to proclaim Sickle Cell and Thalassemia Awareness Day.
For more on Bill 105, click here
Mike Colle re-introduced Bill 105 as Bill 175 to establish the Sickle Cell and Thalassemia Care Ontario and to proclaim Sickle Cell and Thalassemia Awareness Day. The Bill’s first reading was carried on March 19, 2014.
For more on Bill 175, click here
MPPs. SUPPORT SCD&T CARE
Hon. Frank Klees- Newmarket/Aurora
The press conference held on March 19th, 2014 was graciously recorded by Hon. Frank Klees. Watch here
Hon Rod Jackson- Barrie
Hon. Rod Jackson, MPP. for Barrie made a statement calling for a coordinated, comprehensive health care strategy for people with sickle cell and thalassemia (SCD&T) diseases. Below is the link to the statement Mr. Jackson made in the House regarding Sickle Cell Disease and Thalassemia, along with a link to the statement in the official Hansard.
This statement is an aftermath of the Action Day 2014 orchestrated by the Sickle Cell and Thalassemia communities on March 19th, 2014.
Hon. Sylvia Jones- Dufferin/Caledon
Hon. Jones writes Minister Mathews on the importance of a cohesive strategy to educate GP doctors in Ontario.
Under the leadership of Mrs. Lanre Tunji-Ajayi, M.S.M, the founding president/CEO of the Sickle Cell Disease Association of Canada, June 19 was recognized as World Sickle Cell Day in Canada, receiving royal assent on December 12, 2017.
Advocacy for this Bill took over a year and patient advocates including the young Adeniyi Omishore spoke on Parliament Hill about how sickle cell disease affects individuals living with the disease.
For more on Bill S-211, click here ( link it here: https://www.parl.ca/
For more on Bill S-211 Historical, click here (link it here: https://openparliament.ca/
The Sickle Cell Awareness Group of Ontario and the Thalassemia Foundation of Canada thank Hon. Andrea Khanjin and Hon. Rudy Cuzzetto for introducing Bill 255 in recognition of June 19 as Provincial Sickle Cell Awareness Day and May 8 as Provincial Thalassemia Awareness Day.This Bill introduced on March 1st, 2021 passed quickly through the first and second readings; and the Standing Committee on Regulations and Private Bills on April 21, 2021. It has now moved to the third reading.
Bill 255 news release– June 3rd, 2021
Bill 255 news release– March 2nd, 2021
Bill 255 news release- April 26th, 2021
To learn more, visit: https://www.ola.org/en/
The Sickle Cell Awareness Group of Ontario (SCAGO) and the Thalassemia Foundation of Canada (TFC) are requesting your support for Bill 255, the Sickle Cell Disease Awareness Day, and Thalassemia Awareness Day Act, 2021.
As a patient/caregiver/community advocate, we are asking you to write your MPP to support Bill 255. Please find below a template letter and instructions for your use. We thank you in advance for your support.