There are many different ways to connect with us! Whether you are a person with sickle cell disease, a family member or caregiver, a care provider, a policymaker, or a community member with an interest in sickle cell disease, we want to you connect with us!
Join Our Adult Peer Support Group
SCAGO’s Adult Peer Support Group is a continuous entry group (i.e., an open group). A continuous entry group may run for a specific number of months or be ongoing. Membership fluctuates as participants may join or leave the group at any time. Each session may feature a predetermined topic for discussion or sessions may be left open to address the individual needs of participants. Discussions flow easily and giving and receiving support is equally shared at each meeting; thus, gaining insights and making suggestions more spontaneous. The peer support group works as a unit.
The group is facilitated by volunteer co-facilitators. All group members either have sickle cell disease or are family members/caregivers of individuals with sickle cell disease. Their attendance and participation in group meetings are voluntary and not mandatory.
Connect With Us Online
Our email newsletter connects you with people living with sickle cell disease across Ontario and gives you a unique look into the work that is being done to ensure they have access to proper care.
SCAGO’s Whatsapp Forum is a patient-centered online network created to support the primary sickle cell disease
community globally (individuals living with Sickle Cell Disease, their families, and patient organizations). Read the guidelines for the forum here.
This group is a private and safe space to support sickle-cell-disease-related discussions among patients, families, healthcare professionals, and any community member interested in contributing positively and/or learning more about the disease.