There are many different ways to connect with us! Whether you are a person with sickle cell disease, a family member or caregiver, a care provider, a policymaker, or a community member with an interest in sickle cell disease, we want to you connect with us!
Join Our Adult Peer Support Group
SCAGO’s Adult Peer Support Group is a continuous entry group (i.e., an open group). A continuous entry group may run for a specific number of months or be ongoing. Membership fluctuates as participants may join or leave the group at any time. Each session may feature a predetermined topic for discussion or sessions may be left open to address the individual needs of participants. Discussions flow easily and giving and receiving support is equally shared at each meeting; thus, gaining insights and making suggestions more spontaneous. The peer support group works as a unit.
The group is facilitated by volunteer co-facilitators. All group members either have sickle cell disease or are family members/caregivers of individuals with sickle cell disease. Their attendance and participation in group meetings are voluntary and not mandatory.
Connect With Us Online
SCAGO’s Whatsapp Forum is a patient-centered online network created to support the primary sickle cell disease
community globally (individuals living with Sickle Cell Disease, their families, and patient organizations). Read the guidelines for the forum here.
Get Social With Us
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Facebook Posts
PAIN ASSESSMENT AND MANAGEMENT IN PAEDS AND ADULT PATIENTS WITH SCD
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Is it Time to live with Covid-19? Recovery Post Covid-19
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My Sickle Cell Trait Story- Fisola Olayera
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Canadian Blood Services Barriers to Equity in Blood Donation & Pathways Forward
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Simultaneous Session 1 Hyperhemolysis What It Is, How To Treat It, How To Prevent it Dr Pendergrast
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Simultaneous Session 3 Experiences of Innovating Patient Education
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The Role of Policymakers in Advancing Health Equity in Sickle Cell Disease in Ontario MPPCuzzetto
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Mental Health and Sickle Cell Disease Panel
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SCAGO is excited to announce the April Learning for Life session on Hydroxyurea Use in Sickle Cell Disease! Join us on Sat. April 15th at 11AM to hear from an eclectic group of speakers discussing the “need to knows’ about Hydroxyurea! Link to register here: https://eventbrite.ca/e/… ... See MoreSee Less
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SCAGO is excited to announce the April Learning for Life session on Hydroxyurea Use in Sickle Cell Disease! Join us on Sat. April 15th at 11AM to hear from an eclectic group of speakers discussing the “need to knows’ about Hydroxyurea! Link to register here: https://eventbrite.ca/e/…. #sicklecelladvocate #sicklecell ... See MoreSee Less
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Great opportunity to hear and learn! 🥰🙏
Applications are now open for the Research Fellowship Grant, brought to you by SCAGO and Vertex Pharmaceuticals!
Send applications and inquiries to research@sicklecellanemia.ca by April 17th, 2023!
#sicklecell #sicklecellawareness #blackexcellence #sicklecellanemia ... See MoreSee Less
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