Join Our Community

There are many different ways to connect with us! Whether you are a person with sickle cell disease, a family member or caregiver, a care provider, a policymaker, or a community member with an interest in sickle cell disease, we want to you connect with us!


Join Our Adult Peer Support Group

SCAGO’s Adult Peer Support Group is a continuous entry group (i.e., an open group). A continuous entry group may run for a specific number of months or be ongoing. Membership fluctuates as participants may join or leave the group at any time. Each session may feature a predetermined topic for discussion or sessions may be left open to address the individual needs of participants. Discussions flow easily and giving and receiving support is equally shared at each meeting; thus, gaining insights and making suggestions more spontaneous. The peer support group works as a unit.

The group is facilitated by volunteer co-facilitators. All group members either have sickle cell disease or are family members/caregivers of individuals with sickle cell disease. Their attendance and participation in group meetings are voluntary and not mandatory.


Connect With Us Online

Our email newsletter connects you with people living with sickle cell disease across Ontario and gives you a unique look into the work that is being done to ensure they have access to proper care.

SCAGO’s Whatsapp Forum is a patient-centered online network created to support the primary sickle cell disease
community globally (individuals living with Sickle Cell Disease, their families, and patient organizations). Read the guidelines for the forum here.

This group is a private and safe space to support sickle-cell-disease-related discussions among patients, families, healthcare professionals, and any community member interested in contributing positively and/or learning more about the disease.


Get Social With Us

It is very important to be informed of all the COVID-19 #vaccine options available to you. The Novavax Nuvaxovid COVID-19 vaccine was recently approved by Health Canada and may be an option to you if you contact your local public health agency. Visit our COVID-19 hub to learn more!

Diagnosed at just five months old, SCD for everyone around her posed an issue, but for Fitz-Ann she learned that it was an obstacle to overcome. Read her SCD story here: https://sicklecellanemia.ca/my-scd-story

Join us for our next peers and parents session on May 28th! Registered Dietitian Tracey Frimpong will join us to discuss the role of nutrition and wellness in sickle cell disease. Sign up at the events link in our bio!

Save the Date! The 2nd annual Sickle Cell Summit will be happening November 4th and 5th, 2022. This event is an opportunity for people living with sickle cell disease, caregivers, healthcare workers, and community members to come together in improving the quality of life of individuals and families... affected by SCD. We are currently seeking speakers for this year's summit. See the official call for speakers at the link in our bio!

SCD patients are also at increased risk for infections, particularly during childhood. Here are a few helpful tips for avoiding infection!

Les patients atteints de drépanocytose courent également un risque accru d'infections, en particulier pendant l'enfance. Voici quelques ...conseils utiles pour éviter l'infection !

It is National Immunization Awareness Week! The Sickle Cell Awareness Group of Ontario wishes to emphasize the importance of the COVID-19 vaccine and remind you to stay up to date on all routine vaccinations! Please email covid19@sicklecellanemia.ca if you need help booking a vaccine ...appointment.

C'est la Semaine Nationale de Promotion de la Vaccination! Le Sickle Cell Awareness Group of Ontario veut souligner l’importance du vaccin contre le COVID-19 et vous rappeler de rester à jour pour toutes vos vaccinations de routine! Si vous avez besoin d’aide pour réserver un rendez-vous de vaccination, contactez covid19@sicklecellanemia.ca.

#NIAW2022 #SickleCell #COVID19

What is COVID-19 Disparity and Why Does it Exist?

Don’t miss our next COVID-19 webinar on April 30th! Let’s come together to uncover the disparity that exists with COVID-19, and the impact this is having on individuals with Sickle Cell Disease and the Black Community. Register today at... the link in our bio!

Quelle est la disparité dans le contexte de la COVID-19 et pourquoi existe-t-elle?

Vous ne voudrez pas manquer ce webinaire sur la COVID-19 offert par le Groupe de sensibilisation à l’anémie falciforme de l’Ontario et ses collaborateurs. Rassemblons-nous pour mettre au jour la disparité qui existe en ce qui concerne la COVID-19, et ses conséquences sur les personnes atteintes d’anémie falciforme et sur la communauté noire. Inscrivez-vous!

Your voice is vital. As a part of SCAGO’s advocacy work, we are encouraging our members to engage with their local candidates ahead of this year’s Ontario general election. Don’t know where to start? Our Election Candidate Meeting Toolkit has everything you need to know. Access the toolkit ...and more information at https://sicklecellanemia.ca/scago-election-toolkit

Sickle Cell Awareness Group of Ontario