Transition to Adult SCD Care and Post-Secondary Education | 11/26/22
This session covered strategies for achieving post-secondary success for youth with sickle cell disease. Panelists discussed accommodation for students with sickle cell disease, and mental wellness through the post-secondary transition, and two panelists shared their personal experiences navigating post-secondary education with sickle cell disease. The session was followed by the presentation of SCAGO’s 2021 scholarship grants to this year’s awardees, including the Sunday Afolabi Scholarship Grant and the Sholape Animashawun Scholarship Grant.
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Cognitive Challenges in Black People and Children/ Youth living with Sickle Cell Disease | 9/24/2022
For Sickle Cell Awareness Month, Dr. Ayorinde Oyedeji, Psychiatrist, Covid-19 expert member, SCAGO, Associate Professor, Department of Psychiatry, Queens University, and Dr. Laura Janzen Clinical Neuro-Psychologist Division of Hematology/Oncology, SickKids Hospital, spoke on Cognitive Challenges in Black people and on the Impact of Sickle Cell Disease on Cognitive Functioning in Children and Youth living with Sickle Cell Disease.
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Finding your why and living with a purpose |09/17/22
“Dr. Edward Donell Ivy, Chief Medical Officer for the Sickle Cell Disease Association of America and Director of Community Programs with the Association of Black Cardiologists, was the special guest speaker. He shared his own reflections and strategies for staying resilient and thriving with Sickle Cell Disease.
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Town Hall meeting on vaccines, immunization, sickle cell disease, and the black community | 09/15/22
In this town hall, the Sickle Cell Awareness Group of Ontario, and its collaborators discussed Sickle Cell Disease awareness and the Black community’s perception of vaccines. Providing accurate and relevant information and creating a healthy space for feedback is integral to creating improved health outcomes for people living with Sickle Cell Disease.
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Kidney Health and Sickle Cell Disease | 07/09/22
Dr. Jacob Pendergrast, Dr. Istvan Musci, Dr. Pearl Masebe, and Ms. Aljeena Qureshi provide an informative session on Kidney Health and Sickle Cell Disease. They explain what the kidneys do, the risk factors/symptoms of kidney disease, how kidney disease is treated, and speak about the kidneys in the context of Sickle Cell Disease.
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World Sickle Cell Day Global Advocacy Training | 06/25/22
An informative session on advocacy best practices for global sickle cell disease patient organizations and community members
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Clinical Trials and Transplantation | 05/28/22
The patient and clinician panelists share their perspectives on bone marrow transplants with an in-depth review of the clinical trials of bone transplants and sickle cell disease.
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COVID-19 Disparity Webinar | 04/30/22
In this COVID-19 webinar, Dr. Upton Allen, Chair, of Infectious Diseases at SickKids, highlighted the disparity that exists with COVID-19 and the impact of this on individuals with sickle cell disease and the Black community. It’s a must-watch!
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Vaccine Hesitancy Panel Discussion | 03/26/22
In this Sickle Cell Awareness Group of Ontario Learning for Life session, a panel of interprofessional experts discussed the issue of vaccine hesitancy within SCD/Black communities. Attendees had their concerns and questions addressed regarding COVID-19 vaccines and sickle cell disease.
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Mental Health – The Neglected Side of Sickle Cell | 02/26/22
In this session, Dr. Deji Ayonrinde and Dr. Bola Ola discussed the current state of mental illness in the sickle cell community and ways to increase awareness and attention around the mental well-being of those diagnosed with sickle cell.
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