About Us

The Sickle Cell Awareness Group of Ontario (SCAGO) is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with SCD across the four regions of the province. It supports clinical research, engages in psycho-social research, health promotion, patients and care providers’ education, community awareness, and development of best practices guidelines.

Since its establishment, SCAGO invests 100% of its resources in improving the quality of life of individuals and families affected by SCD. It engages in evidentiary advocacy on their behalf with the government, schools, and the healthcare system.

We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Ontarians living with SCD, and ultimately to find a cure for this devastating disease.


Our Vision
Optimize the lives of individuals and families living with Sickle Cell Disease (SCD). This is part of a broader vision for every Ontarian with SCD to have equal and equitable access to comprehensive, standard care regardless of the place of residence in the province.

Our Mission
To reduce the incidence of new sickle cell births and improve the quality of life of individuals and families living with sickle cell disease (SCD).

 Mission Statement

1. To educate the general public about sickle cell disease (SCD) and sickle cell trait (SCT).

Activity to Accomplish Mission
Provide public seminars, forums, in- school lectures, religious places presentations, law-enforcement education, etc.

2. To provide support for patients and families with SCD

Activity to Accomplish Mission
Organize support groups, clubs, etc.

3. To alleviate poverty for patients and families with SCD

Activity to Accomplish Mission
Provide emergency grants, scholarships, and other financial aids.

4. To provide a better understanding/knowledge of the disease to individuals with sickle cell disease and their families

Activity to Accomplish Mission
Provide Learning for Life TM (LFL) educational sessions to improve disease management by families.

5. To contribute to the educational advancement of students with SCD

Activity to Accomplish Mission
Provide scholarships and grants.

6. To improve care and treatment received by individuals with SCD

Activity to Accomplish Mission
A. Advocate on behalf of patients, for life-saving drugs and treatments,

B. Provide education to the medical and allied health professionals on the subject of SCD,

C. Support sickle cell research,

D. Organize Lunch and Learns (L&L) in the local hospitals.

Our Values

Patients and Families come first at SCAGO and as such we EMPLOY the core values below:

S: Support patient and a family-centered approach to the planning & delivery of our services.

C: Committed to improving our services to our constituents.

A: Accountable for our services, resources, and behaviors.

G: Gain recognition as the provincial voice for sickle cell disease

O: Openness and transparency in our services