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Patient and Families Engagement/Oriented Research- Current opportunities

Invitation for survey participation- June 2017:Supplemental oxygen during air travel in SCD—Patient experiences

We are inviting patients and/or families affected by sickle cell disease to complete a research survey about their experience with air travel. More specifically about their experience with health concerns due to sickle cell disease when travelling, as well as, the use of supplemental oxygen during air travel. Results from this study will help inform health care providers about how they can improve patient experience with air travel among patients/families affected by sickle cell.

We expect that this survey will take 5-10 minutes of your time. No personal information will be collected. Your participation in this study is entirely voluntary. Researchers involved in this study are affiliated to the Department of Pediatric Hematology at the University of Alberta. The University of Alberta Research Ethics Board has reviewed and approved this study.

Please use the following link (or copy and paste the link into your web browser) to access the survey: https://redcap.ualberta.ca/surveys/?s=9JA9X4J8KE

We ask that you complete and share this survey. Please feel free to contact Dr. Aisha Bruce (aisha.bruce@ahs.ca) or Amarjot Padda (padda@ualberta.ca), if you have any questions about the study. 

The Sickle Cell Awareness Group of Ontario believes in advancing care and treatment through its support of research and educational initiatives. As a patient association, it is also very important for us to continue to attract more health care professionals into the field of hemoglobinopathy. As such, SCAGO is pleased to support Fellowship programs across Ontario.

University Health Network Fellowship Program- 2011

Fellowship Grant 2011.pdf

Psycho-social

Strategic Plan

Health Research and Review Committee