Currently many patients are receiving Exjade through their physicians on compassionate ground. The dilemma for these patients is that the manufacturer will not continue to make Exjade available to them on compassionate ground indefinitely.
The Ontario Drug Programs (Ministry of Health) promises to look into funding Exjade for patients but up till now, it has not been done. Patients can not wait indefinitely. Lives are at risk. We need you, the patients, the parents and the family members of patients to be part of the campaign by putting your information below, showing support for this cause. A compiled signature will be attached to a letter that will be sent to the Minister of Health.
And please let us know if you are a patient or a parent of a patient on Continous Blood Transfusion.
Thanks,
Board of Directors
Seed of Life Philanthropic Organization