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So I have Sickle Cell Anemia
If you are living with Sickle Cell Disease, the most important thing is to accept this fact and find ways to remain health and crisis free. It is very important to ask your health care provider questions and seek to know more about your disease.

SCAGO has put various articles together to help answer some of your nagging concerns.

Read on and feel free to contact us if you have any pressing question.

Click here to download PDF

Iron Overload is deadly. Public Funding Needed for Exjade Now
Some of the people living with Sickle Cell, Thalassemia, and Rare Anemia Disease need to be on continuous blood transfusion. Without blood transfusion, life could be difficult even prove fatal. Their well-being depends on blood transfusion.
At the same time, the continuous transfusion brings on Iron Overload which if not excreted out of the system, might damage the vital organs of the body. Exjade is a simple pill that can be mixed with juice in the morning and taken by patients to help excrete the excess Iron.

Currently many patients are receiving Exjade through their physicians on compassionate ground. The dilemma for these patients is that the manufacturer will not continue to make Exjade available to them on compassionate ground indefinitely.

The Ontario Drug Programs (Ministry of Health) promises to look into funding Exjade for patients but up till now, it has not been done. Patients can not wait indefinitely. Lives are at risk. We need you, the patients, the parents and the family members of patients to be part of the campaign by putting your information below, showing support for this cause. A compiled signature will be attached to a letter that will be sent to the Minister of Health.

And please let us know if you are a patient or a parent of a patient on Continous Blood Transfusion.

Thanks,
Board of Directors
Seed of Life Philanthropic Organization