Scotia Marathon Ist Annual SCAGO charity challenge at the Toronto Waterfront Marathon.                  Calling all to walk, run and raise vital funds to support Sickle Cell Awareness Ontario.    For the first time,the Sickle Cell Awareness Group of Ontario (SCAGO) will partake in the ScotiaBank Toronto Waterfront Marathon event coming up on Sunday, October 19th 2014.  To register for the race, visit: http://www.torontowaterfrontmarathon.com/en/charity/scago.htm. You may use SCAGO’s customized registration discount code:14TSCC                                          For participants < 12 years old, please use discount code:14TKIDSDISCCommitted to raising $200 or more? You might be entitled to FREE Registration!!

To learn more about registering free and/or to receive a free registration code, contact the project coordinator,Ms. Evelyn Akinbinu at:416 876 7403 or via email at: marathon@sicklecellanemia.ca                                                                                                     For further questions; email us at: secretary@sicklecellanemia.ca.                                          See you at the starting line and spread the word!                                                     Disclaimer: While we thank you for your support; please know that you are responsible to ensure that you are fit to participant in this event. Sickle Cell Awareness Group of Ontario will not be liable for any injury, mishap or accident that you might endure as a participant in the marathon.

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WSCD Poster

World Sickle Cell Day-June 19th
June 19th would be unlike none other in the Greater Toronto Area as the Toronto Catholic and the Seventh Day Adventist schools join in with us to learn more about sickle cell disease.
-Read More

What is Sickle Cell Disease (SCD)? Sickle Cell Disease (also called Sickle Cell Anemia) is a group of red blood cell disorders you have inherited and are born with. Sickle cell disease is caused by an abnormal form of Hemoglobin. This is the part of your red blood cell that carries oxygen around the body and keeps your vital organs working. In sickle cell disease, the abnormal Hemoglobin (HbS) is not able to work properly. The red blood cells become stiff and block up the blood vessels in your body, causing pain and damage, and they also get destroyed quickly, leading to anemia and other complications. Currently there is no universal cure for sickle cell disease — Read more

What is Hydroxyurea? Hydroxyurea is a drug (capsule) that was originally used to treat some forms of blood cancer (Leukemia) and blood disorders that can later turn into Leukemia. It has been used for over 15 years to treat sickle cell disease. Hydroxyurea works in a few different ways, but the main way is to increase your body’s production of Fetal (baby) Hemoglobin. We know that this then protects you against sickle cell disease. It is a safe drug and there is no evidence to suggest increases the risk of cancer in patients with sickle cell disease. Like all drugs, it does have some side effects, and you need regular blood test monitoring. Also, unlike pain killers which you take when required, Hydroxyurea must be taken every day to be effective. Hydroxyurea is the only drug therapy available for sickle cell disease and has been shown to prolong survival, reduce pain episodes and some of the complications. Unless you have been told by a specialist that you have very mild Sickle Cell Disease, you should consider going on the drug.– Learn more

HIV-O Group 1 The Sickle Cell Awareness Group of Ontario in collaboration with Sickle Cell Association of Ontario and Association d’Anémie Falciforme du  Quebec wrote Health Canada on its stand on the Permanent deferral of donors who have lived in or travelled to certain African countries (Cameroon, Central African Republic, Chad, Congo, Equitorial Guinea, Gabon, Niger or Nigeria) since 1977 and the sexual partners of these potential blood donors.

—- Read More Wednesday March 19th, 2014 MPP Introduced Bill to Improve Sickle Cell Care in Ontarioread more