Sickle Cell Awareness Group of Ontario (SCAGO) is a membership based patient association. SCAGO puts patients and families affected by Sickle Cell Disease (SCD) first, by advocating on their behalf with the government, schools and healthcare community. It understands the challenges faced by people with SCD and their family members.
To address some of these challenges, it developed various programs including Learning for Life Seminars, and Peers and Parents Support Network. It also contributes to the educational advancement of students with SCD by providing scholarships and grants. In addition, SCAGO established the impactful Lunch and Learn Program to support knowledge translation among care providers. Through numerous activities, SCAGO provides support (mental, emotional and physical) to patients and their families and raises awareness in the community to reduce the number of new SCD births.
Ryan has a hard time choosing tenses to describe who he is. Should he say “I am, or was, a Law clerk”, “I am, or was, a community activist”, “I am, or was, a poet…”? He certainly has been all those things, and more. In 2013, Ryan the poet, aka ?uest, was featured in The Great Black North, Canada’s first ever anthology of poetry written by over 90 black Canadian poets. 'A Poetic Rendition of Me' starts. Read More.....
Sickle Cell & Thalassemic Disorders Act
SCAGO is a proud member of the Sickle Cell Disease Association of Canada (SCDAC). Founded in 2012, SCDAC is the national body regulating patient advocacy and support in Canada. It currently has 6 member organizations.