Scotia Marathon

Sickle Cell was represented at the
Scotiabank Waterfront Marathon 2014


For the first time in the 25 years history of the ScotiaBank Water front Marathon; sickle cell disease was one of the diseases represented. The diverse SCAGO team included individuals with sickle cell disease; family members; care givers and volunteers. Did you know that you can continue to raise funds for the SCAGO team until October 31st? To donate or refer your families and friends to donate to the SCAGO team; please copy the link on to a fresh browser: https://secure.e2rm.com/registrant/donate.aspx?eventid=140859&langpref=en-CA&SPID=14843972&Referrer=http%3a%2f%2fwww.torontowaterfrontmarathon.com%2fen%2fcharity%2fscago.htm You may also contact the marathon coordinator at marathon@sicklecellanemia.ca. Join us in 2015!!!

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WSCD Poster

World Sickle Cell Day-June 19th
June 19th would be unlike none other in the Greater Toronto Area as the Toronto Catholic and the Seventh Day Adventist schools join in with us to learn more about sickle cell disease.
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What is Sickle Cell Disease (SCD)? Sickle Cell Disease (also called Sickle Cell Anemia) is a group of red blood cell disorders you have inherited and are born with. Sickle cell disease is caused by an abnormal form of Hemoglobin. This is the part of your red blood cell that carries oxygen around the body and keeps your vital organs working. In sickle cell disease, the abnormal Hemoglobin (HbS) is not able to work properly. The red blood cells become stiff and block up the blood vessels in your body, causing pain and damage, and they also get destroyed quickly, leading to anemia and other complications. Currently there is no universal cure for sickle cell disease — Read more

What is Hydroxyurea? Hydroxyurea is a drug (capsule) that was originally used to treat some forms of blood cancer (Leukemia) and blood disorders that can later turn into Leukemia. It has been used for over 15 years to treat sickle cell disease. Hydroxyurea works in a few different ways, but the main way is to increase your body’s production of Fetal (baby) Hemoglobin. We know that this then protects you against sickle cell disease. It is a safe drug and there is no evidence to suggest increases the risk of cancer in patients with sickle cell disease. Like all drugs, it does have some side effects, and you need regular blood test monitoring. Also, unlike pain killers which you take when required, Hydroxyurea must be taken every day to be effective. Hydroxyurea is the only drug therapy available for sickle cell disease and has been shown to prolong survival, reduce pain episodes and some of the complications. Unless you have been told by a specialist that you have very mild Sickle Cell Disease, you should consider going on the drug.– Learn more

HIV-O Group 1 The Sickle Cell Awareness Group of Ontario in collaboration with Sickle Cell Association of Ontario and Association d’Anémie Falciforme du  Quebec wrote Health Canada on its stand on the Permanent deferral of donors who have lived in or travelled to certain African countries (Cameroon, Central African Republic, Chad, Congo, Equitorial Guinea, Gabon, Niger or Nigeria) since 1977 and the sexual partners of these potential blood donors.

—- Wednesday March 19th, 2014 MPP Introduced Bill to Improve Sickle Cell Care in Ontarioread more